Useful Links

Burwood Centre

We provide support for deaf children and their families with our assessment services. The centre provides a family-friendly and supportive environment, with an assessment dedicated to the needs of the family. There is always an opportunity to discuss your child's needs in depth during the assessment. A detailed report is also produced, summarising our findings and recommendations.

e-mail:info@burwoodcentre.org
Tel/text: 01635 573820
Fax: 01635 231445

Ear Foundation - Sound Advice

If you need time to discuss your child's progress after cochlear implantation and they are between 3-18 years old, experienced professionals in cochlear implant technology, management, outcomes and the latest research can offer you the opportunity to discuss current issues for your child and possible ways forward. Assessment and report followed by discussion with experienced professionals.

e-mail:ear@earfoundation.org.uk
Tel: 0115 942 1985
Fax: 0115 924 9054

Chear

Chear is an independent centre for children's hearing assessment and management of hearing impairment.

e-mail:info@chears.co.uk
Tel: 01763 263333

Hear2Learn

An independent educational-audiological consultancy providing services to children and their families, schools, education authorities, charities and businesses.

e-mail:admin@hear2learn.com
Tel: 07946 569 222

2ears2hear

2ears2hear is a website for everyone with an interest in bilateral cochlear implants and the importance of securing NHS funding.

ACE

The Advisory Centre for Education is a national charity that provides advice and information to parents and carers on a wide range of school based issues including exclusion, admissions, special education needs, bullying and attendance.

Department for Children, Schools
and Families

Formerly the Department for Education and Skills, this government site has information, statistics, publications and much more relating to children and young people.

e-mail:info@dcsf.gsi.gov.uk
Tel: 0845 602 2260 (publications helpline)

NDCS Education Service

NDCS provides information, advice and guidance to parents to enable them to negotiate appropriate support for their deaf child's special educational needs. NDCS may also provide support to parents through appeals to the Special Educational Needs and Disability Tribunal.

e-mail:helpline@ndcs.org.uk
Contact the Helpline: 0808 800 8880

IPSEA

IPSEA (Independent Panel for
Special Education Advice)

Trained volunteers give free, legally based independent advice and support in England and Wales.

Tel: 0800 018 4016 (general helpline) Mon – Thurs: 10 am – 4 pm & 7 pm – 9pm, Fri: 10 am – 4 pm
Tel: 0845 602 9579 (Tribunal helpline) Mon – Thurs: 10 am – 1 pm

Langley Wellington
Solicitors

Langley Wellington Solicitors

Langley Wellington has a very experienced team dedicated specifically to all aspects of education law. Lots of experience with special educational needs.

SEN Legal

SEN Legal are leading experts specialising in education law, particularly appeals to the Special Educational Needs and Disability Tribunal (SENDIST) throughout England and Wales.

SOS!SEN

Run by volunteers who have worked in education or related services and offer free independent advice on all aspects of SEN including Statements and tribunals.

e-mail:
Tel: 020 8538 3731

everyclick.com

Use everyclick as your search engine and every time you search we get a donation!

Northbrook Fundraising

Purchase your gift wrap, birthday and Christmas cards from Northgate and raise money for CICS at the same time. Following the link above chooses CICS as your charity from the list of charities and schools and around 20% of the value of your purchase will be donated to CICS.

Recycle4Charity

Recycle used ink cartridges, old mobile phones, etc. Use this link and all proceeds go to CICS.

EarHelp

EarHelp

Reference site providing information and advice on all aspects of ear health as well as facts and figures and explanations of certain conditions.

United Kingdom Council on Deafness

The United Kingdom Council on Deafness works with and for deaf organisations in the UK by providing information, advice and support and by representing the views of the sector to government and policy makers.

e-mail: info@deafcouncil.org.uk
Tel: 01206 274075
Textphone: 01206 274076
Fax: 01206 274077

Advanced Bionics

The HiResolution Bionic Ear System is the only cochlear implant system that can provide HiResolution sound to children and adults with severe or profound hearing loss. HiResolution sound is designed for the REAL WORLD, where every detail of sound matters.

e-mail:uk@advancedbionics.com
Tel: 01223 847888
Fax: 01223 847898

Cochlear

Cochlear is the leader in cochlear implants supporting over 200,000 Nucleus recipients across the world. Cochlear continues to lead the way in innovation, participating in more than 90 collaborative research programs with university and research hospitals in more than 35 countries.

e-mail:info@cochlear.co.uk
Tel: 01932 871500
Fax: 01932 871526

MED-EL

MED-EL cochlear implant systems combine the latest expertise in technology and hearing science for unparalleled performance, safety and reliability. The MAESTRO® cochlear implant system comprises of two speech processors, different wearing options, two implant designs and a wide variety of electrode arrays.

e-mail: office@medel.co.uk
Tel: 01226 242 874
Fax: 01226 771 056

Euro-CIU

The European Association of Cochlear Implant Users represents on a European level the interests of deaf or hearing impaired people who have regained hearing perceptions through a cochlear implant.

Home Counties Cochlear Implant Group
(no website)

The HCCIG is run by deaf people for deaf people who use cochlear implants. It is a support network where implantees, potential implantees and parents of children with cochlear implants can exchange information and discuss all aspects of cochlear implants in a social environment.

e-mail:
Phone Advice: Monday - Friday 10.00am - 4.00pm
Tel: 020 8360 0514
Textphone: 020 8360 0514

National Cochlear Implant Users Association

The NCIUA was established to provide practical support to implant users, their family and friends. It encourages best practice in the provision of cochlear implants, rehabilitation, aftercare and appropriate educational opportunities for children.

There are too many of these to list here, but here are a few examples of circles of people with common interests, i.e. deafness and cochlear implants.

CICS Circle - UK

CICS Circle - UK

Send a blank e-mail to: cics-subscribe@topica.com

CI Circle - US

CI Circle - US

Send an e-mail to: majadomo@lists.maxbaud.net. In the body of the email type: subscribe cicircle

No 9 Parent Place
(NDCS)

No 9 Parent Place (NDCS)

www.ndcs.org.uk and then click on the appropriate link.

Oxford AV Circle

Oxford AV Circle

Send a blank e-mail to: OxfordAVcircle-subscribe@topica.com

Reverb - UK

Reverb - UK

Send an e-mail to: Reverb-uk@yahoogroups.com

CI Music Scene

CI Music Scene

THE place to find out about music news and events for Cochlear Implant Users.

Belfast

Belfast Regional Cochlear Implant Centre
Belfast City Hospital
Tel: 02890 329241

Birmingham

Bradford

Bridgend

Bristol

Cambridge

Cardiff

Kilmarnock

London
GOSH

London
Portland (private centre)

London
RNTNE

London
St. George's

London
St. Thomas's

Manchester

Middlesborough

Nottingham

Oxford

Southampton

High Trees

High Trees (Springfield University Hospital)
Deaf Child and Family Service

Part of National Deaf Services working (with the family) with deaf children and young people under the age of 18 with emotional, behavioral and mental health problems.

e-mail:helen.miller@swlstf-tr.nhs.uk or andy.holwell@swlstf-tr.nhs.uk
Tel: 020 8682 6925

1Voice

1 Voice

Network and support for children and families using communication aids.

e-mail:info@1voice.co.uk
Tel:0845 330 7862

Afasic

Help and advice for children with speech and language difficulties, not deaf specific, but some good information nonetheless.

e-mail:info@afasic.org.uk
Tel: 0845 355 5577 (10.30a.m. to 2.30p.m. Monday to Friday)

AG Bell

AG Bell

The Alexander Graham Bell organisation for the hard of hearing advocates "independence through listening and talking". They promote the use of spoken language and hearing technology, and produce a number of publications.

e-mail:info@agbell.org

Auditory Verbal UK

A national charity helping hearing impaired children acquire listening and spoken language skills through Auditory Verbal Therapy.

e-mail:info@avuk.org
Tel: 01869 321492

Christopher Place

The Speech, Language and Hearing Centre at Christopher Place (London) is for babies and children under five who are hearing impaired or have delays in speech, language, and communication.

e-mail:info@speech-lang.org.uk
Tel: 020 7383 3834

Cued Speech Association

Complete language through vision. The aim of cued speech is to overcome the problems of lip reading and thus enable deaf children and adults to understand full spoken language.

e-mail:info@cuedspeech.co.uk
Tel/text: 01803 832784

DELTA

Deaf Education through Listening and Talking. A voluntary association of deaf adults, parents and teachers of deaf children for families interested in the natural aural approach for their children.

e-mail:enquiries@deafeducation.org.uk
Tel: 0845 108 1437

Dyspraxia Foundation

Help, information and support for families whose children have dyspraxia.

e-mail:dyspraxia@dyspraxiafoundation.org.uk
Helpline: 01462 454 986 (10 am - 1 pm) Mon - Fri
Admin: 01462 455 016
Fax:01462 455 052

Ewing Foundation

The Ewing Foundation is a national charity which works to raise the education and social achievements of deaf children by fostering the maximum use of their residual hearing and by promoting deaf children's spoken language.

Visit the website for regional contact details

iCommunicate

icommunicate is a website designed to provide free information and resources relating to communication, and improving communication skills. Our aim is to help individuals with communication difficulties, as well as provide information to parents and teachers about how they can develop and enhance their children’s speech and language skills. For those adults and children currently having speech therapy, we hope this site will provide extra resources and activities to work in conjunction with an established speech therapy schedule, or to provide individuals with the necessary resources to make some progress independently.

Contact through website: Contact icommunicate

John Tracy Clinic

Provides free, parent-centred services: Parent Distance Education/ Correspondence Courses and Summer Sessions for families of young deaf children ages birth to 5 years.

e-mail: pals@jtc.org

Phoenix Group

Based in Herts, provides themed Workshops and a regular Youth Group (11+ years) for deaf children and young people (aged 0-25 years) whatever their hearing loss or communication needs, eg Learning to Listen, Telephone Skills, Keeping Safe. Click on the link for an up to date programme of events.

e-mail: info@phoenixgroup.org.uk
Tel: 01438 722142

RCSLT

The Royal College of Speech and Language Therapists is the professional body for speech and language therapists and support workers.

e-mail: info@rcslt.org
Tel: 020 7378 3012

Wordswell

Specialist speech and language therapy. Assessment, information, advice, support.

email: janetokeefe@wordswell.co.uk
Tel: 01353 698156

CHARGE Syndrome

Support, information and advice for families with children with CHARGE Syndrome.

Contact through website:Regional Contact Details

Contact a Family

Information, advice, support groups and contacts for a huge range of disabilities.

e-mail: helpline@cafamily.org.uk
Free helpline: 0808 808 3555
Textphone: 0808 808 3556

Congenital CMV Association

Support, information, contacts and advice for families with children born with congenital CMV.

Meningitis Trust

The Meningitis Trust is a registered charity committed to increasing understanding of meningitis and meningococcal septicaemia, and providing specialised professional services to anyone who has been affected. These services offer emotional, practical and financial support to help people rebuild their lives.
Freephone 24-hour nurse-led helpline: 0800 028 18 28
Tel: 01453 768000
Fax: 01453 768001

Sense

Support, information and advice for families with children who have visual difficulties in addition to deafness, including Usher Syndrome.

e-mail: info@sense.org.uk
Telephone: 0845 127 0060
Textphone: 0845 127 0062
Fax: 0845 127 0061

ci-4teenz

www.ci-4teenz.com

A fun website for teenagers who are interested in cochlear implants.

www.ndcsbuzz.org.uk

A site closely monitored by NDCS, The Buzz gives deaf young people the opportunity to make friends, check out the latest information and to chat and discuss issues that matter to them. There are two sections: age 8 – 11 and age 12 - 18.

Sounding Board for Teens

Site for teenagers and young adults using cochlear implants to enable them to share tips and experiences.

British Cochlear Implant Group

The British Cochlear Implant Group is a professional body representing all the Cochlear Implant Centres and other specialist medical practitioners throughout the United Kingdom.

Ear Foundation

In 1989 The Ear Foundation introduced to the UK the innovative technology of cochlear implants for young children who were too deaf to benefit from hearing aids. Today The Ear Foundation provides a wide range of support for the implantation process including training courses for parents of implanted children and for the children's local professionals, as well as for the children and teenagers themselves.

e-mail:ear@earfoundation.org.uk
Tel: 0115 942 1985
Fax: 0115 924 9054

National Deaf Children's Society (NDCS)

NDCS is the national charity dedicated to creating a world without barriers for deaf children and young people. Provides factsheets, publications, impartial information and support to families and professionals on every aspect of childhood deafness - schooling, communication, parenting, health services, welfare benefits, equipment and much more.

e-mail: helpline@ndcs.org.uk
Tel: 0808 800 8880 (freephone helpline)
Minicom: 0808 800 8880
Fax: 020 7251 5020

Royal National Institute for the Deaf

The RNID is the largest charity representing the 9 million deaf and hard of hearing people in the UK. The RNID aims to achieve a radically better quality of life for deaf and hard of hearing people. We do this by campaigning and lobbying vigorously, by raising awareness of deafness and hearing loss, by providing services and through social, medical and technical research.

e-mail:informationonline@rnid.org.uk Tel: 0808 808 0123 (freephone)
Textphone: 0708 809 9000 (freephone)
Fax: 020 7296 8199

United Kingdom Council on Deafness

National infrastructure organisation for charities and professional bodies working in the field of deafness.

e-mail: info@deafcouncil.org.uk
Tel: 01206 274075
Textphone: 01206 274076
Fax: 01206 274077